The Cri du Chat Syndrome Support Group was founded in the mid 1980’s by Ann Wilson, a parent of a child with Cri du Chat Syndrome, after discovering that there was no support group specifically for this syndrome.
A Steering Group Committee was formed in 1991 and the group became a registered charity in 1993.
The support group is formed by families and relatives of those with Cri du Chat Syndrome as well as research members who have expressed interest in this condition.
The group is open to anyone who has interest or need.
The group supplies information, advice and support through its website and through its Clinical Advisory Group formed by members of the council, themselves parents or relatives of those with CdC.
We receive no government funding and are funded by membership, individual and corporate donations as well as fundraising activities.